The Story So Far

  • I'm a writer, photographer, consultant. Age 51. My father was a reporter and editor. Then he became something other than that. He died February 8, 2010 at 87. He was widowed in 2003. His decline started a little earlier. His sister died of Alzheimer's.

May 2011

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Comments

julie e

Hi,glad to hear you are getting a little calm time to shore
up for the next big wave. It sounds like you come from a
family of doers and thinkers so it must be extra hard to come
to terms with your fathers decline.
Does it seem to you that people begin this with losing the thing
that seemed most important or is that just where it becomes
noticed first? My husband was a banker and real estate developer
in California and the first thing to go was his ability to handle
finances and numbers. Could that part of the brain have been over
stimulated? Not likely since they say the more you exercise your
brain the better. Maybe it's more difficult to deal with losing those abilities and causes more anger and frustration
than other areas of loss.
I find it interesting that he too has a lot of skin problems
and must go to the dermatologist for removal of precancerous
spots and growths. Probably that has more to do with living
in CA and too much sun than it does with AD. It seems our
social life consists of Dr. appointments.
I look forward to your next posting.

Alan G. Ampolsk

Interesting thoughts about brain activity and what gets damaged first. I suppose that in my father's case I could make a similar connection -- he was a writer and editor, and his first noticeable problems were word-related. He had difficulty rememembering names, then nouns. But I'm not sure there's anything causal going on there. Word-choice problems affect a lot of people -- as do problems with numbers. I doubt that maps neatly to what they did in life -- I'm sure there are bankers who have verbal problems and writers who have problems with numbers (which came second in my father's case). I think you're onto something when you suggest that the problem that stands out is the one you notice first -- and that might have something to do with an area where the person used to be capable. Words mattered to my father, so when he started getting things wrong, it stood out. Numbers seemed to have played the same role in your husband's case. I sometimes wonder, though, if there weren't earlier signs (behavioral? mood-related?) that we missed.

The challenge is that the disease involves the whole cortex, which means there's a world of stuff to go wrong. Some big capability or other (words, numbers, visual processing, spatial reasoning) is likely to go down first and when it does, it gets our attention.

As to the skin problems, I gather that's more age- and lifestyle-related than Alzheimer's-related. Though there's always the chance that some new back-door connection will turn up.

I hear you about doctors' appointments -- I live in a world of helping professionals myself...

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