The Story So Far

  • I'm a writer, photographer, consultant. Age 51. My father was a reporter and editor. Then he became something other than that. He died February 8, 2010 at 87. He was widowed in 2003. His decline started a little earlier. His sister died of Alzheimer's.

May 2011

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Comments

Jackie

Do you realize how much this process changes the caregiver? It was an unexpected byproduct for me. Please don't anticipate how death may be. For all my worry it turned out to be much easier than I had expected. The difficult thing about the disease is that we live our lives trying to plan, decide and control and the disease makes all that impossible for us.

Alan G. Ampolsk

Oh, you are absolutely right. You go into it thinking it's an exception to your life and at some point you realize that this *is* your life.

Part of the story I'm trying to tell is how you get changed through the process.

I'd probably argue that it's not just the disease - it's life that makes it impossible for us to plan, decide and control life.

I hope to have more to say about that soon.

Thanks for posting.

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